Notes from Saturday, July 28:
  • If Friday was a “good day”, Saturday was a “bad day”
  • We took Henryk to get the first imaging of his head as a newborn
  • They did a head ultrasound on him
  • The results came back and shocked us again
  • Hydrocephalus was not the issue
  • What had appeared to be hydrocephalus on the right hemisphere actually presented itself that Henryk suffered a series of multiple strokes on the right hemisphere
  • We were devastated and shed many, many tears
  • Though clinically Henryk was presenting to be a perfect baby, his head imaging appeared to be looking worse.
  • Our biggest concern, worry, fear was that he would continue to suffer more strokes and thus lead to a fatal stroke at some point in the future