Henryk died yesterday afternoon at 2:54pm, Sunday, January 6, 2013. He was 5 months and 10 days old. It was very peaceful, almost ordinary. After a day full of perfectly-timed good-byes he just breathed and then didn’t breathe again. He looked so beautiful, his skin like porcelain.

We gave him a bath, took out his PICC line, snuggled and cried a lot, and got Lily up from her rest time to tell her. Then at 7:30 the funeral home came. Michael carried our little boy’s little body out to the car and they took him away.

Death wouldn’t be so hard if it didn’t mean going away. His sweet presence is gone leaving memories that are all encompassing. Our empty arms are full of pain, though there is real peace believing that his presence is in heaven.

Please pray for Lily. She is so confused. Her third birthday is this Saturday.